I lived in Zimbabwe, was a springboard diving and swimming champion, and hit a diving board at the age of fourteen (14). Not long after, I was diagnosed with epilepsy. Still today, I am convinced this was due to puberty, a hormonal imbalance, and stress from exams at that time. Doctors denied these reasons.
My seizures commenced as petit mal (now known as absence seizures) which later turned into grand mal (tonic clonic) seizures a year later. Thank goodness, I had a wonderful family who helped me accept my epilepsy, explained how...
Hi my name is Sasha Pina. I am 21 years old and was diagnosed with epilepsy at the age of 16 a year after a traumatic brain injury.
The diagnosis was Complex Partial seizures coming from my left temporal occipital lobe. The next step was to try and find the right medications. Around that time I would have multiple seizures a week. We found the right medication but I would still have breakthrough seizures and dealing with the side effects of the medications. So I ended up on a cocktail of 3 medications. Altogether I tried 6...
This is a follow up to our original story from April 2014. We want to update families, so that people can see that continued progress and success is possible.
We also want to update everyone on the growth of Epilepsy Awareness Day at Disneyland and the upcoming event this year.
Until our only child, Sofie, developed epilepsy, Brad focused on the family’s retail store and consulting business and Candy worked representing composers, volunteering at Sofie’s school, and with their local special needs group.
We were not registered last year, we happened to just be at Disney for this event and it was amazing!
My daughter is not one who reaches out to people, she says away from other kids due to so much difficulty tracking conversations.
Even at Disney it's just "us" because she can't keep up. Last year she spotted kids everywhere in purple shirts (oh I wish I had one for my daughter).
She would yell for them, and encourage us to catch up so she could meet them. She just felt like she belonged. This gathering gives...
Aubryn is a very happy go lucky 13 year old that was recently diagnosed with Idiopathic Generalized Intractable Epilepsy. She was born health with no problems of anything. Once she turned 3 and started preschool, she became very hyper and was distracted very easily. Other than that, everything seemed to be fine. Then she got to where she needed to be put on medication to go to school.
A few months into her first grade year she really started having difficulty learning and retaining information. Finally, after being retained in
Emily has had epilepsy for 8 years but was officially diagnosed about 6 years ago. She has Generalized Epilepsy with Intractable Epilepsy.
She is currently on two different medications to keep her seizures at bay. She has gone from having 3-5 seizures a day that would last about 5 minutes each to now having about 1-2 seizures a week that last less than a minute. She enjoys helping others, talking about what it's like to live with epilepsy and make connections with children around the world with her #EpiBear project.
Megan, now 22, was a Junior in high school and one day in class, the students had to standup and talk about diseases, etc. One girl stood up and said that Epilepsy was a disease. Megan came home and was really bothered about that and decided to educate the students at her high school with the facts about epilepsy.
Megan then decided that for her Gold Award Project for Girl Scouts she was going to do a campaign about Epilepsy called “Epilepsy Awareness Campaign Just Discuss It”. Her project had three parts. First, she presented