In 2013, Brad and Candy Levy were inspired to organize the first EADDL to celebrate their daughter’s seizure freedom. Sofie Levy was diagnosed with epilepsy in 2005 and had epilepsy surgery in 2009. Her parents wanted to shed light on epilepsy and dispel some of the myths and misunderstandings around the condition. They also wanted to bring families together.
“Having epilepsy, or a family member with epilepsy, comes with a whole set of issues that are experienced only by people with this disease,” they wrote on the EADDL website. “People feel isolated … This event helps overcome that isolation, as people can come together and learn from one another.”